I participate in a number of medical research projects at Reading University which I find interesting and if they can learn anything, all well and good.
Of course, this means that you give over various personal details to help them move forward on their projects. All covered by various UK data protection rules.
I also volunteered for similar projects with Biobank and again gave up personal details under UK data protection rules. Image my surprise to find that Biobank appears to have given access to that data to insurance companies!!
Seems that was not in the small print that I remember.
Just announce today that Palantir, the USA based Data Analytics company has just been awarded a £ 480m contract for the NHS.
Palantir will work with its UK partner Accenture to set up and operate a Federated Data Platform (FDP) (Link is to NHS explanation) for the NHS. For more information about FDP’s see Wikipedia‘s explanation.
This deal opens up all sorts of data privacy issues, which have already started some serious discussions.
In case you were wondering, how many data breaches — where private data is accidentally released due to errors, system failures or hacking etc.
Here’s a List of Data Breaches and Cyber Attacks in 2023 from the IT-Governance website.
Makes you think!




